… there is no fun thing about hormones.
I always feel good about life when I’ve seen my lovely GP. She’s just so understanding. She gets that medical ideals are not always possible when you live with a chronic illness. She pats me on the back when I’m succeeding and allows me days when motivation and will to go on is flagging. I’ve not met many doctors who can look past a diagnosis, medication and pain and actually see that the person they are dealing with is a human being, just like them. A human being whose 10.30am problem does not go away when the GP goes home at night. It chips away 24/7 until they next see the patient a week or a month later. Sometimes my EDS is beating me, and sometimes I’m the one on top. Its swing and roundabouts, and my doctor understands this.
Today we discussed my pill and how my pain is in relation to my hormones. I’m about 3 months into Loestrin 20 which Dr L says isn’t ideal as a contraceptive, but it is a second generation progesterone pill containing norethindrone as opposed to a true progesterone – it’s thought that this should have less effect on joint laxity. Well… I don’t know how much it’s affecting my joint laxity, but my pain is horrendous. Pre-pill days, I had better days but also particularly bad days. Now, I just feel like my body had all-over toothache 24/7 with super angry bits depending on use/injury.
Gynaecology want me to take three packs of the Loestrin 20 without a break, stop for a week and then take three packs without a break. Basically, they want to see what happens when my hormones aren’t fluctuating as much. I don’t think that the problem is 100% the hormone fluctuation, but the simple presence of them. My gynaecologist’s answer to this is to try an injection that basically puts you into a temporary menopause. It’s kind of scary, but the idea of my ovaries not pumping out any hormones and making my boobs feel like human pressure cookers IS appealing…
Because the pill is causing me so much pain, my sleep is awful. My ankles, wrists and hands are particularly angry. Pain relief is sort of a moot point, so we’ve opted for a few Zopiclone sleeping tablets. They make me feel like ass the next day, but I’m willing to pay that price of the occasional night of good sleep. I need to hang in there on this pill for a bit longer to really give things a chance to settle. I don’t have high hopes, in fact, I’m pretty sure I’m just going to feel increasingly crap on them…
The Dymista nasal spray from ENT is wreaking havoc with my sinuses and making my eyes sore, so I’ve to stop that. The down side of this is that my consultant is now going to push for surgery to straighten my septum, reduce my turbinates and put grommets in my eardrums. She’s really nice and is also putting me forward for immunotherapy with the hope of reducing the 5 antihistamines I take a day. Turns out these antihistamines dry out your nose and sinuses which is problematic when you’ve had life-long ears, nose and throat problems.
I don’t want surgery, but it’d be really nice to be able to breathe without pain, constant sinus infections, ear infections and the other hoard of problems that live in my face-plumbing.