It’s been an absolutely crazy couple of weeks over here.
I saw my GP yesterday and she was nice. It’s amazing what some correspondence from super high up professors will do for a girl with a poorly understood illness… The biggest difference I’m noticing so far is regarding my allergy situation. I was seen at immunology and they did a load of prick testing down my arm. It turns out I am allergic to the entire freakin’ world which is super fun. As a result, I’ve gone from one 180mg Fexofenadine tablet a day to two or three when needed. I also have Cimetidine 400mg to take twice a day because it works on a different histamine receptor and could also help my reflux – or something like that?! The five days running up to my appointment were utter hell. No antihistamines left me drowning in a pool of snot and feeling like I wanted to scratch all of my skin off. Guess what? I’m NOT allergic to rabbits – Nigel can stay!! They did start telling me that because of my allergy to house dust, my home needs to be immaculate. I need to do this and that and… Wait a minute. I’d earlier in the week seen my physiotherapist who had given me get another lecture on pacing. Do the NHS prescribe cleaners? Because if I’m going to damp dust on a daily basis, I’m going to need a freakin’ miracle over here.
The pain clinic gave me Tapentadol to try. My GP had never heard of it, nor had I. And because it’s so uncommon, the pharmacy didn’t have it either and had to order it in. It’s an opioid pain killer and seems to be considered as a potentially less life-wrecking option to Oxycodone – YAY! I’ve only taken the first one today, so we’ll see how that goes. A lady in my EDS support group shared with me that sustained release medications seem to make her less ill, so I asked for that option. No spews yet, not even close.
I’m still on the Paracetamol at least twice a day, Vitamin D and Esomeprazole daily. It’ll come as no surprise that I invested in a pill box. I’m never quite sure if I took my tablets or if I just thought about taking them. Now I’ll know!
When I was in seeing my GP yesterday, I told her that I really want to get back to work. Her face looked as if I’d just taken a shit in her cereal. At least this confirms that she had be pegged as a lost cause! You can only imagine my amusement when I went on to tell her that I’d crowd funded £1500 for a wheelchair in two nights. Stick that in your pipe! I’ll write another blog on this next time because it’s bloody marvellous, but I’m DELIGHTED with myself and feeling really positive at clawing back some sort of meaningful life…
I need to go and get ready for my amazing friend, Geo, to come round and cut my hair. Anything past my shoulders is not easy for me to deal with so a whole lot of hair is coming off. Womp womp.