I seem to go through the same cycle time and time again when it comes to visiting my GP. I am fairly certain that many chronically ill women will share in my experience. There are three stages to the cycle.
1 – I go and see the GP with an issue. Because they don’t know much about EDS or Hypermobility Syndrome, I am sent away for a number of weeks while they chase up letters/results and do their homework. I already know what’s wrong, but the doctor will never, ever take my word.
2 – I go back and am spoken to like a child; not that you should even speak to children in such a patronising way. I get upset and frustrated at their lack of knowledge and outright refusal to believe me which is a one way ticket to meltdown city. You know when you cry and cry and cry and the only thing that can fix it is pizza and wine? Yeah, that!
3 – I go back with J with me for support. Because he is a man, he validates my claims of pain and struggling FOR I AM A HYSTERICAL WOMAN WHO SHALL NOT BE TRUSTED. But J comes in, nods in agreement with my recollection of symptoms and just like magic, I get what I want. WHAT? WHY?
Sometimes, I wish I had a penis.
Not only has this been the recent cycle, but today was a super special day. I went in after the obligatory three week wait and put it out there that I think my drug allergies, general allergies and gastro issues are caused by Mast Cell Activation Syndrome (MCAS) which is often found in people with Ehlers-Danlos Syndrome but is an even more “out there” diagnosis – It didn’t even have a name until 2007. And because J was there, she wasn’t a massive fucking bitch like last time. In fact, she is happy to refer me to immunology and gave me a bunch of drugs to try and ease my symptoms in the meantime.
Hilariously she only had in my notes that I am allergic to ONE drug. Good record keeping, assholes.
I’m mad, but glad. I also think my doctor fancies my boyfriend. It’s the only answer. Either that or she is just an utter cock-womble who is out to make my life as frustrating as possible.